Monthly Archives: January 2021

January 30, 2021 Ultimately, severe disability is isolating. You knew that. The books say that. But almost a year into an unprecedented pandemic, I can feel that in a way that I never felt before. Oh, sure, there are internet communities. If I sound helpless enough – even more than this blog post – in an email to the right group, many will rush to offer ideas or resources. But life with disability is isolating for Dar and for us. […]

January 22, 2021 Yesterday, a lot like a lot of Dar’s days lately in this pandemic-stricken winter when Dar can leave the house for no more than maybe an hour. Wifey and I are working for a living, we don’t have time to take Dar on five-hour excursions, and even if we did, we’re supposed to be sheltering in place. But five-hour excursions, also called school days, were Dar’s pre-pandemic life. He is frustrated. He is regressing. He is screaming. […]

January 14, 2021 This isn’t a good week, and I’m way too dispirited to do a “full” blog post. The feeling I’m feeling, though, is enough for 1000 blog posts. Enough, and way, way too much. This week, when I look at Dar, I think LOSS. He’s a loss leader. I learned that term when I self-taught economics…a part of the business that directly loses money, but in a roundabout way helps the business, often bringing more customers or revenue […]

Today I have a very different sort of topic that I just want to get out there into my little blogosphere, then next week we can go back to more of the usual. I don’t feel good about my kids’ adulthood. Do other parents? There’s a wealth of research suggesting that America’s abundant years of the second half of the twentieth century were a historical aberration, and that we’re now regressing to the mean, and in the mean, your kids […]