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Mouse Morality

February 26, 2020, 12:57 pm

Yesterday, the world’s biggest movie studio, the Walt Disney Company, announced a leadership change. Bob Chapek takes over from Bob Iger. But the truth is that nobody really knows the larger effects that their company has on everyone – not Iger, not Chapek, not Walt Disney, not Abigail Disney, not John Lasseter, and certainly not my son Dar. I mused about this as I walked around the Orlando theme parks over President’s Day weekend. We might say that “Disneyfication” has
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Triennial trailer

February 19, 2020, 5:16 pm

This entry is really a trailer, or preview, of a much longer entry to come soon. For a while now, Dar’s team has been preparing for Dar’s “triennial” evaluation IEP, something that the district does every three years to confirm Dar’s eligibility and to reassess and re-evaluate current procedures and goals. Some of this has involved unusual work for me in completing evaluations and such. The district contacts me when it needs my help, but in this case was less
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Why is Dar Like the Western Front?

February 7, 2020, 7:08 am

They say a picture tells a thousand words. For me this picture tells at least 1,917 of them. But I’ll just share a few of those with you. Regular readers of this blog can understand why I might compare Dar’s condition to World War I’s Western Front. Years of struggles seem to provide no tangible benefits. We dig our trenches deeper, we try new strategies, and we end up frustrated. By the way, this is my Christmas week. This is
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It Was Going So Well…

January 30, 2020, 2:35 pm

Sleep deprivation is a real mind-suck, life-suck, and productivity-suck. This isn’t news. No, instead it’s one of about a hundred things for you to think about at three in the morning. It’s a velvet fog, and not in the jazzy Mel Torme way. God help people who are suffering from insomnia or chronic pain. I believe Michael Jackson would be alive today if he could just get to sleep at night. Maybe that just goes to show you that all
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Good week

January 23, 2020, 9:51 pm

Yes, Dar has been calmer this week. Thanks for checking in and checking this out. The new regimen…may be working. Fingers crossed. Thanks to that, this week I have actually had time to do some reading, including a lot of things about autism. Maybe I should signal boost them here? Maybe not. If Dar’s five-alarm fire is down to three or so, the relative calm reminds me that I have a lot of other things to sort in my life
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New help!

January 16, 2020, 3:28 pm

Great news: Dar has a new doctor! His current doctors wanted this. No one is being replaced. Instead, for the first time, we’re adding a child psychiatrist to his “team.” And confession: I may be a little bit in love with her. Context! We’d been looking for a child psychiatrist for months and months, going back to the day when Dar’s neurologist suggested such a thing (that had barely crossed our minds). At the time, I said, can you refer
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After Camp

January 9, 2020, 1:07 pm

Hello and welcome back from Winter Break. I’ve enjoyed the excuse not to update the blog because…this has not been the easiest period in Dar’s life. Suffering is supposed to ease. But sometimes, it gets worse, with no end in sight…for decades. The most recent period of awfulness began on Dar’s final day at his first-ever camp, sleepaway or otherwise. I won’t say their name because I don’t want to jeopardize his chances of attending in the future. Now, you
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Happy New Year! Happy New Decade!

December 31, 2019, 10:08 am

And thanks so much for checking in! In case you missed it, I said most of what I wanted to say about the 2010s here. Dar has drained me of the energy to better summarize his decade and to speculate about his decade ahead. I guess those few words will have to be symbolic enough. Dar is…very difficult lately. I mean, we’re talking about new and scary difficulties that I’m not ready to share quite yet. But it helps me
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Vineland 3

December 13, 2019, 8:55 am

Last week, the supervisor of Dar’s ABA therapist asked us to complete the latest Vineland survey, which is now Vineland 3. The Vineland Adaptive Behavior Scale was designed by experts at Pearson Education to measure and quantify degrees of intellectual disability, developmental disorders, and other delays. I absolutely understand why I am required to fill in this form from time to time. I am a parent of a special-needs child. My child is nowhere near a questionable case, but there
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Maui 2019

December 5, 2019, 9:40 am

This week, we pretend that Dar can speak and put together an annotated photo collection. Since I can’t know what Dar’s imagination conjures, I’ll use mine to conjure something…unrealistic. Hey Dad! I had a terrific time in Hawaii! Thanks for everything. I’m still amazed that the below was the view from our room. What a lanai! And look at that break in the hedgerow, perfect for me to sneak out and find the beach…kidding, of course! #sorrynotsorry You know how
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