Skip to Content

Caught-ism

July 12, 2017, 11:45 am

For the first time in the 3000-words-a-week, almost-4-year history of this blog, I’m going to confess to a crime. Sort of. But before that… Speaking of firsts, for the first time let’s talk about the Better Care Reconciliation Act, the Senate’s current bill that means to repeal and replace the Affordable Care Act (also known as Obamacare). I’m not a big fan. I have that in common with about 83% of Americans. But my personal connection is different than most.
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

Dar’n On The Fourth of July

July 5, 2017, 3:11 pm

Dar likes road trips and the seashore. We like making him happy and taking time off. One cheap way for all of us to get what we want is to take minor holidays on the central coast, as we did during 2017’s long Independence Day weekend. Window policy changed on this trip. When I drive around Berkeley with Dar, I often roll down the window next to his back seat, because it makes him happy. I used to roll it
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

ABA Provider Report, June 2017

June 28, 2017, 11:35 am

Hi loyal readers, Going to spend this week quoting liberally, but not authoritatively, from Dar’s ABA (Applied Behavior Analysis) Provider’s report that we were given this month. If you’re one of those glass-half-full people, you can see this report as helpfully making sure that Dar continues to receive services, or perhaps you can see this as “WHEW! Glad my kid doesn’t get judged like this.” If you’re one of those glass-half-empty people, you can see this report as a whole
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

First Grade Finish Line

June 21, 2017, 2:35 pm

Hey parents! What do you do with all that stuff that the school sends home on the last week of school? I’ve got books, journals (with literal scribbles, no words), various reading guides, and all kinds of other paperwork including a “Top Five Moments of 2016-2017” montage: Exploratorium, Music with Lisa Z., Girls Basketball, Adventure Playground, Tilden Little Farm. In Dar’s case, he truly wouldn’t mind if I threw it all away. He doesn’t even take a second glance at photos
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

A Pause for Applause

June 14, 2017, 8:56 am

On one recent day in Tahoe, two unrelated people met Dar, tried to chat him up, and separately marveled, wow, you’ve really taught him well to never speak to strangers! Ha. That’s an opening joke, not relevant to today’s post. Today I want to tell you about Dar’s hand-clapping. He doesn’t clap hands like you and me. No, this is where his latent cerebral palsy really manifests itself. He sort of holds his left hand like it has an invisible
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

How Autism Prepared Me For 45

June 7, 2017, 4:49 pm

Every day is a new outrage. Fatigue is setting in. How long are you expected to marshal all your resources against this problem? I mean, doesn’t Oprah say to cut toxicity out of your life? Does the phrase “banging your head against a wall” mean nothing to you? How about “taking a bucket to an ocean”? Even easier: “Get over it,” or in the ancient words of Elsa of Frozen, “Let it go.” If this person were your employee, you’d
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

Dar @ Tahoe, May 2017

May 31, 2017, 12:00 pm

It’s all good, except for the screaming and the waking. Like every other Californian who lived through this wet winter, I thought to myself: skiing? Yet it’s hard for us to get away. Wifey was nice enough to offer her birthday weekend, more specifically Memorial Day Weekend. Normally, the end of May is not an ideal time to ski, but after 50 feet of February snow, Squaw Valley announced it would be open at least that long. Wifey’s offer went
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

Why Deny the California Child?

May 24, 2017, 5:28 pm

A therapist once told me that it’s important for Dar to continue to try new things. Last weekend was one weekend where he did, thanks to my friend Steve’s wedding in Los Angeles. Road trips are mostly terrific with Dar. The upside is that he loves watching the world go by, and we get to see him happy for hours. The downside is that he keeps tapping his Mom in the passenger seat while she’s trying to relax. Despite his importunements,
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

Dar’s two stims of 2017

May 17, 2017, 5:06 pm

These days, when I come home, or when Dar comes home, he walks right up to me and takes my hand. He wants me to do something that he can’t express on his iPad/talker. I could put the requisite icons on his talker, but I’m not sure what words would be appropriate, and I’m also not sure that Dar regularly requesting this particular action would be appropriate. In this situation, Dar leads me to the living room couch. Then he
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail

R @ 5, Dar @ ?

May 10, 2017, 3:22 pm

“She lost the privilege of loving you, so now you have to love yourself.” Today is our second son’s 5th birthday. Happy birthday little R! Five years ago today, during the first seconds of his life outside the womb, he screamed like a banshee, and I felt as relieved as Steve Young on the 1995 day he beat the Chargers in the Super Bowl. By the time of R’s birth, Dar was 2 ½, and we knew Dar had serious
Continue Reading »

Share this post
FacebookTwitterGoogle+PinterestEmail