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The five things Dar wants to do

August 9, 2018, 11:24 am

This is a picture of Dar enjoying my tickles. That’s great when it happens. Not pictured: all the times he doesn’t want to be tickled. During that vast majority of his waking hours, what does Dar want? For something like eight years, we never knew what Dar wanted. I can hardly understate the difficulty and despair that goes with living this way. Ever hear the phrase “be careful what you wish for”? Right. Well, be careful wishing for knowing what
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Amazement Parks

August 2, 2018, 5:06 am

Hi and thanks for reading. Sorry about my unannounced hiatus last week, but we were at Southern California amusement parks, which is what this post is naturally about. I can remember thinking, maybe twenty years ago, that people jockeying for advantage in amusement parks probably fake or exaggerate the disability of a member of their party. I used to think that people would pretend that their kids have, you know, a particular aversion to lines (queues). I remember thinking: you’re
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Supposed Former Reunion Junkie

July 19, 2018, 1:25 pm

Back in summer 1998, when Alanis Morrisette was putting the finishing touches on her album Supposed Former Infatuation Junkie, I was helping to put the finishing touches on my high school’s 10-year reunion. At the time, that didn’t bother me at all. Along with a few classmates, I threw myself into reunion-organizing, even giving a (poorly received) speech at the event. Later in life, I would wonder why I spent so much time on something so ephemeral instead of something
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Righting the Boat

July 12, 2018, 1:50 pm

When I was Dar’s current age, my mother took me around the world. The trip was audacious, vaguely inappropriate, and entirely wonderful. I remember very well our adventures in Japan, China, Thailand, India, Nepal, and Germany and Britain (yes). If Mom calculated that eight was an old enough age to remember things for a lifetime, she calculated correctly…at least for a kid like me. For a kid like Dar, it’s impossible to make such a calculation. If I were to
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Happy Birthday USA!

July 4, 2018, 1:31 am

Proper post (about this year’s IEP) will wait until next week. Until then, some pictures. Share this post

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Progress on Goals during 2017-2018 School Year

June 27, 2018, 1:29 am

This week, the school’s report on progress on goals. In the past I’ve typed these into the blog, but this time I think I’m going to just show them. I want to give you more of a peek into my life, and also maybe provide some comfort for people who may just be entering this process. It’s not all that scary…I mean, except when it is. This is what it looks like.   Share this post

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Dar Hits the Summer Solstice

June 21, 2018, 9:25 am

Dar’s summer has officially begun. What’s it mean? We had his IEP during the last week of the school year. You know, where they talk about his progress on goals, and then we make new goals. My goal is to present both sides of that – uh, in the next few weeks. Thanks for checking, loyal readers! His annual IEP used to be scheduled around his birthday in October. Regular readers know that it was usually a disaster. They would
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Berkeleyside Shines a Light on My Kid

June 14, 2018, 11:29 am

These are such important articles. They really micro-explain the situation my kid is in. I think they stand by themselves as good enough for your autism reading for this week. I’ll comment later. 🙂 Here they are: Part I Part II   Share this post

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“Reluctant Keepers of a Brother With Autism”

June 7, 2018, 2:40 am

First, please read this. Actually, I wouldn’t be surprised if the link fails to work. In that spirit, I’ll actually just cut and paste it here. This content belongs to its author, Elizabeth Choi, and the New York Times, not me. I reproduce it here…for reasons that I hope will become obvious. Grace will get the pearls passed down from my grandmother. Her twin brother, Nick, will get the woodworking tools my husband, Dan, inherited from his grandfather. They will
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Break Week

May 31, 2018, 2:55 pm

Thanks for checking this space! Between wife’s birthday and our anniversary and the series finale of The Americans and my ongoing book deadlines, this entry got away from me. More next week! – Daniel Share this post

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