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Monthly Archives: May 2019

New diagnosis

May 29, 2019, 3:36 pm

Dar has a new one. From doctors. It’s actually kind of a big deal. I’m kinda writing a big entry about it. Which will wait until next week. Thanks, loyal readers, and see you then. Share this post

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“What’s the Opposite of Opposite?”

May 23, 2019, 8:41 am

“What’s the opposite of opposite?” my just-turned-seven-year-old asked me last week. When a kid that age asks their parent a question, and that parent doesn’t answer, but instead beams with pride, what does the kid think? “My parent is crazy?” “When will I learn the answer?” Or…”maybe I just did something very cool?” More than do something cool, I feel like Dar’s brother just invented a way of understanding his brother. And I love that, because long after Dar’s mom
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They Can Transfer Your Kid For Screaming Too Loudly

May 16, 2019, 9:04 am

This post is here to help parents of kids with autism. If you don’t need the help, feel free to move on to the next page. Like just about anyone with a severely autistic child, I habitually read a lot of information online about autism. When we sought to transfer our child from a “mainstream” school to a more specialized one, I read many, many horror stories. They’ll tell you that you need an advocate. They’ll tell you to record
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Dar’s First 2 Weeks at His New School

May 9, 2019, 8:19 pm

Everyone is asking me: “how is Dar’s new school?” Answer: It’s kinda great! I think it’s really early to make any big judgments. Nonetheless, we have an IEP in a few weeks as a sort of a check-in. What will we be talking about? If this was your nine-year-old, we’d ask him what he thinks of the place. Since this is Dar and he can’t tell us, we have to go by other metrics. One of those is my experiences
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Mayday!

May 1, 2019, 6:02 pm

Happy May Day, y’all. I *will* be talking about Dar’s new school at some point. Probably next week. But I thought to use May Day to mention that I feel a lot of solidarity with working people everywhere and that…I hate to see them over-spend their lives on someone like Dar. Just today I saw a young woman who had spent the school day with Dar and she looked…I hope this is okay to say…exhausted. I think a lot about
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